Sunday, September 28, 2008

Carter's Crew and Forest's too...

This is Carter Robertson and Forest at the JDRF Walk 2008. Carter was diagnosed just a couple of years ago with Type 1 (Juvenile) Diabetes. His mother Laura is a very good friend of mine. She was actually at my house when she got the call from the Dr. to tell her that her sweet boy DID indeed, have diabetes. We stood in the doorway of our guest bedroom while she cried and I "tried" to tell her that she could handle it. (What did I know, right???) Fast Forward 2 years and here we are... 2 months after Forest is diagnosed with Type 1 Diabetes... and we get the pleasure of doing the "Walk for a Cure" with the Robertson's once again, only this time, we got T-shirt privileges! ( : Forest officially added HIS name to the team T-shirt. Don't they look precious together? I can't wait until Forest is old enough to appreciate how meaningful the walk really is. It is emotional in that, everyone that you meet practically has a very CLOSE tie to Diabetes... either they have it themselves or are caring for someone who has it. Many very precious people told me their stories... I was almost too preoccupied to care, but when I got home and settled down for a minute, I was so blessed that those people had shared with me. It was very encouraging. One young man, (probably 16), got up on stage with many of his teenage buddies behind him and said, "I've been fighting this since I was 18 months old... and I think it is TIME for a CURE!" It was very moving to me.

I'll have more pictures soon....

Thursday, September 25, 2008

Fo-tos of Forest



The September Birthday girls...

From Left to Right... Anjanette Marie Shine Spann, Jeanette Marie Riley Spann, Christina Gayle Spann Cook and Reta Marie January Riley. Ladies of substance. Friends and family through very hard, hard things. People that I am forever thankful that I know.

I love you all!

Sunday, September 21, 2008

Les Miserables

I am a miserable excuse for a person.   What kind of heart so desperately wants to surround itself with luxury and relaxation? Is it a wicked one? I pray not. For it is MINE! Do not feel sorry for me...I may have a wee one who is in need of constant care. I may not know the luxury of consecutive hours of sleep for many years... I may have even handed over my second son to the comforting hands of my heavenly Father... but I do not know suffering like many know suffering. I can't help but think that true suffering is the mother whose child looks in her eyes with sickness, or hunger, or pain and she has no way to remedy those things. She has no one to turn to... no medicine or food... 

I have all of the things I need to help Forest. "Oh, sweet boy, do you not feel well, shh, be still, all I need to do is pick up the phone and help is here.... whatever medicine you need." I can say that. Many cannot. How can I pretend that mine is a road of suffering?  I have all of the food I need, a lovely climate controlled home, lots of clothes to choose from (and clean), a car to drive, a pool to swim in... 
And yet, I still NEED. I need , I need, I need.... blah, blah, blah,

Do I really need anything? I should be more like M. Charles Francois-Bienvenu Myriel. He is worth knowing. I hope he does not turn into a wretched character. I must confess that I am only on the first chapter. But, I think probably he will not. I am inspired.....

Thursday, September 11, 2008

Doctor's appt.

We went to the Dr. today. It is kind of emotional for me. They always seem to act like I check his blood sugar levels too often. I have to ask... if it were your child and you know they have dropped more than 200 points before in an hour... wouldn't you be a little worried??? They agree and are frustrated that he isn't really following the rules yet... but still. Also, our avg. blood sugar was way too high. I could have told them that.

No, they still do NOT have the results from the DNA test yet. Man... patience is hard.

We got diluant for our insulin. Now, I can give him a bigger volume but a very small dose. That should help me with my accuracy. We shall see. I am very tired since he didn't sleep well last night so, good night all.

Wednesday, September 10, 2008

Things I love

A super hot cup of tea in the morning. Time on my laptop to find out how many points McCain and Palin are leading by in the polls. A slow drizzle on the flowers outside of my window. A sweet baby boy babbling in his swing. Time in the morning to discuss global issues, the economy, social philosophy, parenting and personal beliefs with my amazing husband. A clean kitchen. An 11 year old beauty chanting catechisms to herself in preparation for her test. A sweaty, tired, incredibly handsome soccer boy who just scored 7 goals in a row at practice. The glow of his face when he shows us his 100% math test. A husband who surprises me with a "palin chick" sweatshirt. Good blood sugar levels. Warm brownies. Paninis. Sushi.

I could go on and on. What a good life.

Tuesday, September 2, 2008

Clarification

Oh dear oh me oh my... Who IS this person that has taken over my blog??? I don't know her and I really don't like her. She is far too emotional and negative to be me. I know that for sure. I do apologize. I really have tried to keep her off of the blog. (You might have noticed by the lack of posts.)But, obviously she has been sneaky and crawled over to the keyboard once or twice and let her fly.

(:

Anyway, when the real Christy comes back full time, I'll let you know. In the meantime I seem to be here temporarily. It truly is incredible what a lack of sleep... Well, not really a lack of sleep but COMPLETE AND UTTER SLEEP DEPRIVATION can do to a person. It is VERY VERY UGLY.

I happened to glance back over some of my posts when Forest was a wee baby and oh how I rambled about not getting much sleep. Oh you poor pathetic wimp of a person (I said to myself) you just THOUGHT you weren't getting enough sleep. moo ha ha ha.

Ohhhh, anyway, what am I rambling about? I wanted to just clarify about my last post. It really wouldn't matter at all if I were home schooling, or sending the kids to ACS or sending them to public school right now for that matter... I guarantee you I would be able to rant and rave about any of it. Such is the frame of mind you find yourself in when you get NO rest. Anything and everything can manage to completely irritate you. All the way down to a dripping faucet or a song on the radio. So, pardon my complaining about school. It really has nothing to do with it. It is just that I am not capable of handling even the smallest of stressers right now. I can see that I will be OK when I finally get some sleep. I know this because, I have gotten a few good nights in the last month and it always makes a world of difference. So, imagine if I actually got a few good nights IN A ROW... or maybe even a week? Woo Hoo would that be great!

I also wanted to share with you all what my fervent, intense constant prayer is right now. When an infant is diagnosed with Type 1 Diabetes, there is a small chance that it could be Neonatal Diabetes. This is a monogenetic form of diabetes that appears in infancy. It can be transient or permanent. The beauty of it is that they have managed to successfully treat this form of diabetes with a pill. Yes, you heard me correctly, A PILL. No shots, no pump. Yes, you still need to check your blood sugar occasionally and you HAVE to rely on the pill... but it is worlds and worlds better than where we are now. So, we should have the results back from the DNA test sometime near the end of the week. (They took the blood while we were in ICU but it takes a month to do this test.) I am praying, begging, pleading with God to let this be his diagnosis. I know one shouldn't bargain with the Almighty Creator of Heaven and Earth but I have promised to never be lazy again and spend all of my time as wisely as possible and NEVER, EVER complain... EVER!!!!!!!! If that matters. (: Honestly, I know I could never do enough to deserve His mercy in any way, but I am certainly praying for it. If you have a minute and remember, please join me in this prayer.

I love you all! Sweet dreams.